Today on Ujima: Lovecraft, Planetfall, AIDS and Cinders

Today’s show on Ujima began with me interviewing local writer, Jonathan L Howard, about his new book, Carter & Lovecraft (which I reviewed here). We talked a fair amount about Lovecraft the man, about the World Fantasy Awards and the controversy surrounding the trophy, and about how and why Lovecraft might be relevant today.

Next up was Emma Newman. She couldn’t make it into the studio (too busy) so we did a pre-record over Skype. Emma and I talked mainly about Planetfall (which is excellent): about 3D printing, small isolated communities, mental illness and the need for diverse characters in books. We also talked a bit about Emma’s year of horror, about Tea & Jeopardy, and about the forthcoming Split Worlds live role-playing game and masked ball (tickets for which are available here).

You can listen to the first hour of the show here.

The second hour began with Sheila Ollis from The Brigstowe Project talking about the current state of the AIDS epidemic, both in Zimbabwe and among immigrant communities in Bristol. While it is good to know that AIDS is now survivable, it was clear from talking to Sheila that there is still a very long way to go, especially in communities were myths about the disease are still widely believed.

Finally I welcomed my colleague, Andreeja, and Nick Young from The Creative Youth Network. Nick is directing a modern re-imagining of Cinderella using the young people from CYN as his cast and crew. Andreeja, as well as working for Ujima, is the social media guru for CYN. Nick and I could probably have talked for a very long time about fairy tales, and I did send him away with a recommendation to read Cat Valente. Along the way we referred to this article in Bristol 24/7, and I had a bit of a rant about this particular show at the Hippodrome.

You can listen to the second hour of the show here.

The playlist for today’s show was:

  • Lucky Star – Labi Siffre
  • Tokyo – Lianne La Havas
  • Take the A Train – Duke Ellington
  • We were Rock n Roll – Janelle Monáe
  • Hound Dog – Big Mama Thornton
  • Together Again – Janet Jackson
  • Independent Woman Part I – Destiny’s Child
  • Unstoppable – Lianne La Havas

I was particularly pleased to play Big Mama Thornton. Her version of Hound Dog was #1 on Billboard for seven weeks in 1952, selling almost 2 million copies. But because that Presley guy covered it no one remembers her any more.

My next show is going to be on December 30th. I rather suspect that no one will want to be on it and I’ll just play music for two hours, but if anyone is keen to be interviewed let me know. I can do pre-records on Skype so it doesn’t matter where in the world you are.

On Mental Illness

Various things have conspired to make me think a lot about mental health issues this week, by far the most important of which is the sad news that David J Rodger, one of the authors who has read at BristolCon Fringe, took his own life on Sunday. I didn’t know David very well, though the one time I met him he seemed like a fascinating bloke whom I would have liked to know better. Other Bristol writers did know him better, and report that he had been struggling with depression for some time. There are some great obituaries online from Jo Hall and Tom Parker.

Depression is something that I know well. So is the mental unease that comes from gender dysphoria. These two combined might easily have killed me a little over 20 years ago. Instead, thanks to some good drugs, an improving medical climate for trans people, and people who loved me, I was able to embark on the journey that is gender transition.

For many people, however, mental health problems are something they feel that they can’t talk about, and perhaps can’t even ask for help over. Judging from what Jo and Tom say, David was one such person. Suicide is one of the leading killers of men, and I wish that there had been rather more talk about it last week on International Men’s Day, instead of all the MRA nonsense about the pain of being denied sex by uppity feminists.

I have just done an interview with the wonderful Emma Newman, part of which will feature on Women’s Outlook next Wednesday, and all of which I intend to put on Salon Futura in due course. Given the nature of the lead character in Planetfall, we talked about mental health issues, and the stigma surrounding them, quite a bit.

I greatly admire the courage Emma has in talking about her anxiety issues online. We are still very much in a world where any suggestion of weakness of that sort is liable to be held against you. These days, if you are applying for a job, prospective employers will comb social media for any suggestion of character flaws. HR departments, it seems, are less interested in finding someone who will be good at the job, and more interested in screening out anyone who might be seen as “difficult” in any way.

For trans people it is even harder. The medical profession might have (partially) moved away from the idea that we are all crazy, and towards the understanding that transition cures most of our mental health problems. Society has not taken the same leap. For example, this report from California shows how trans pilots are required to prove themselves sane each year, even though the FAA’s official guidelines say it is not necessary. I have similar problems with GPs, all of whom seem to be convinced that I am likely to be Overcome With REGRET! at any moment.

Of course if you are subject to regular harassment as part of your daily life, and many trans people are, you can still have mental heath problems post-transition. Last night we had the Annual General Meeting of LGBT Bristol, of which I am a trustee. The staff spoke eloquently about how many of the people they helped had complex and multiple problems to face in their lives. Not just trans, but trans, depressed and homeless, for example. I have tremendous admiration for the people who make it their day-to-day business to help such folk.

Help is available, and hopefully is improving in quality. Shortly after talking to Emma I got email inviting me to a one-day conference in Bristol in January. It is being run by Mind, and it is focused on suicide prevention for LGBT people. If it helps just one person, it is absolutely worth a day of my time being grilled about what it is like being trans.

Life Happens

So as if I didn’t have enough to do, now I need to find myself a new GP (again) and sort out supplies of hormones if I can’t do it quickly. In many ways life was easier before the Equality Act because then if people didn’t want to deal with you they could just say so. Now they are not allowed to be so blunt, so that have to invent reasons for why you are not welcome, and pile on the microaggressions in the hope that you go away.

Still, at least I can afford to go private for hormones (though not for serious healthcare if anything goes badly wrong). Many trans people have to rely on the NHS for all of their treatment. It’s no wonder so many people cite the “health care” they have received as a cause of depression and suicidal feelings.

Trans Studies Now – The Conference

The purpose of my trip to Brighton was to attend an academic conference at the University of Sussex. The title of the conference was Trans Studies Now, and the objective, fairly obviously, was to present the very latest in trans studies across a range of disciplines.

Roz Kaveney was one of the keynote speakers, and she opened up the conference with a talk about her work. That included a reading from Tiny Pieces of Skull, some of her own poetry, including her Inanna poem, and a poem by Catullus that she has translated.

The Catullus poem is about Attis, the consort of the Goddess Cybele who, myth has it, castrated himself for the love of the Goddess. This is usually presented to modern readers as being the result of a fit of madness — being unable to possess the Goddess, Attis choses to castrate himself rather than have any other woman, or he’s driven mad by her beauty, anything but the actual reason. Catullus, Roz notes, make it very clear that Attis wanted to become a woman. He is, of course, the archetype of the Galli — the castrati priestesses of Cybele whom I mentioned in my trans history talk. I’ll be having a lot more to say about them in future.

For now let’s just note that Catullus also involves lions in the story. Lions are, of course, sacred to Ishtar/Inanna, and Cybele’s cult originated in Syria, which is not that far from Mesopotamia.

My paper was due up on the first session after Roz’s talk. I was paired with a Californian trans-male poet, Jonathan Bay, who is now based in Edinburgh, and with my new friend Emma Hutson with whom Roz and I had had dinner the night before.

Jonathan’s poetry centered on trans issues. I particularly enjoyed the one about his nervousness about going through US immigration (even as a citizen, as a trans person it is scary), and the one about his transphobic uncle who moved to Montana rather than live close to Jonathan.

Emma gave a really good paper about the “standard narrative” of being trans, and how one size definitely does not fit all. She clearly has a very good understanding of complicated historical narratives such the rise of transgenderism and the split in the trans community it engendered. For a first time giving a paper at a conference it was very impressive. (Believe me, I have heard a lot of bad papers, especially at ICFA.)

The audience listened quietly to my paper and seemed to have enjoyed it. Only Roz was sufficiently well-versed in SF to ask in-depth questions, and she’s heard most of the content before, so I didn’t really have much to deal with. In the absence of questions, I offered to give them an example of trans-themed SF. A few of you will know what I mean when I say I read “Goldilocks” for them, and that appeared to go down well too. My paper is available from Academia.edu.

After lunch we had the second keynote speech, which was by Katherine Johnson. She’s been in trans studies for a long time, and gave a fine overview of the history of the field, and where it is now.

The afternoon paper session that I attended featured three presenters from outside of the UK. Olivia Fiorilli is from Portugal, and gave a very nice summary of the state of trans pathology in a variety of European countries. Olivia correctly identified a growing trend towards depatholgisation of the condition, and democratisation of treatment. As I said to her afterwards, it is rather ironic that the roadblocks that gender specialists deliberately put into the pathway with the intention of weeding out “unsuitable” candidates for transition have ended up encouraging people to find ways around the standard treatment pathway, which in turn has caused the gender specialists to adjust their protocols in an attempt to retain control of the process.

Next up was Olga Lidia Saavedra Montes de Oca who is from Cuba. This was a really fascinating paper. Under the old Communist regime gender roles were strictly enforced. Adopting proper gendered performance was seen as being evidence of being a good Revolutionary. Of course trans people existed in Cuba, just as they do in every other country. Typically they would leave home so as not to cause embarrassment to their families. Now that there has been philosophical change in the government, many of these trans people are being welcomed back home, because for Cubans family ties are apparently paramount.

Finally we had Sabah Choudrey, who is one of the founders of Trans Pride and also a Muslim. He gave an excellent presentation about how trans people of color are excluded from trans narratives and trans activism. In the UK that generally means actual exclusion. In the US, where there are greater numbers of TPoC, it generally means separatism — there are white trans activists who are the ones who have a chance of getting the ear of the government and access to what little funding is available; and there are TPoC activists who have to do everything for themselves but seem to get a lot more done.

The final session was a film about trans life in Turkey, but by that time I had been off email for over 24 hours so I took time out to check email. I gather that the film was quite distressing.

Overall it was a very interesting day. I met lots of good people, and I hope that Sally Munt and her team as Sussex do this again.

The Ujima Women’s Outlook Dementia Special

Wednesday’s show was put together for me by Subitha Baghirathan. All I had to do was ask good questions and deal with a few technical problems that we had at the start.

The first hour saw Subitha along with Dr. Judy Haworth, a dementia specialist, and Wayne Song from a Chinese community group tell us what is happening in South Gloucestershire. Dr. Haworth gave us some really great information about the nature of dementia conditions, and how we can at least try to stave them off. Keeping active, both physically and mentally appear to be key.

You can listen to the first hour of the show here.

In the second hour I was joined by Jan Connect from the City Council plus Daisy Rajput, Sato Black and Ade Couper, all of whom are involved in dementia support work in some way.

You can listen to the second hour of the show here.

The one really important thing that I learned from the show is that there are still far too many people out there who associate dementia with mental illness, and therefore believe that those living with dementia can make themselves better by “pulling themselves together”. It is really important for everyone to understand that dementia is caused by actual physical deterioration of the brain, that the main cause is aging, and that consequently there should be no shame attached to the condition.

My thanks again to Subitha and all of my guests for helping create this really important show.

Subitha also suggested some of the music for the show. As I result I have been introduced to Amadou & Miriam, a hugely talented couple from Mali, and to the amazing blues pioneer, Memphis Minnie. This also gave me an excuse to play Little Feat, and Led Zeppelin.

Tomorrow on Ujima – Dementia Special

Tomorrow I’ll be on Women’s Outlook again. This isn’t one of my shows — I’m covering for Paulette while she’s in Jamaica on family business — but it should be very interesting. We have a dementia special, which has been planned for us by our good friend Subitha Baghirathan. I’m just there to ask old-person-in-the-street questions.

By the way, I’ll be leaving for Oxford straight after the show so I can get to the Tolkien lecture. Don’t expect me to be online much tomorrow.

In Which I Am A Responsible Adult

I guess that in most people’s lives there aren’t many opportunities to do something important. Some of us have serious platforms from which to effect change, others have jobs that involve saving lives, but for most of us the things we do aren’t that vital. That’s certainly the case with me. Wittering on about books is great fun, but mostly not life-changing. This week was different. This week I got to do something that I hope will make a real difference to people’s lives in years to come.

Some of you may remember that back in January I had a little rant about how things won’t get better from women, and trans women in particular, without education. I particularly noted that when training on trans issues was done, trans people were often excluded from the process. I honestly didn’t expect things to get any better in the near future.

But in February I did the trans history talk at the M-Shed. In the audience was Dr. Rachel Hogg, who works with Bristol University Medical School. She and some colleagues were in the process of putting together some LGBT+ training materials for the medical students. They’d done this in previous years for LGB issues, but this year they were keen to include trans and they wanted to know if I would be willing to help.

This was all part of something called Disability, Disadvantage & Diversity Week (3D Week for short). During this week, second year medical students get a range of lectures from people who are liable to be excluded from the health service in some way. There were sessions on disabilities, on cultural diversity, on homelessness, on world health and so on. Rachel is a former co-chair of the Gay & Lesbian Association of Doctors & Dentists, so she is well placed to talk about LGB issues. She wanted me to talk about trans issues.

Time Out. Let’s think about that for a minute. I was being asked to give two days of lectures to a group of young people who, in a few years time, will become doctors. Many of them will become GPs. These days the chances are that some of them will have trans friends. But for some I might be the first trans person they would knowingly meet. Can you say, “responsibility”?

In the past most GPs have had no training at all on gender medicine. If they touched on issues of sexuality it may well have been only with regard to mental health or HIV. Rachel said yesterday that when she was a student being gay was still being taught as a mental illness, even though it was officially declassified in 1973. UCL’s medical school now has some good resources on LGB issues (we showed some of their videos), but as far as we know no other medical school in the country has training on trans issues. If they do, I very much doubt that they have actual trans people involved. If that’s true, well done Bristol for leading the way.

Part of the point of 3D Week, however, is to get people from the community to talk to the students about the issues that affect them. I think that’s a wonderful idea.

Hopefully I did a decent job. I’m confident that I know what I’m talking about, and while I clearly can’t represent all trans people I did refer the students to the fabulous My Genderation films, and to GIRES where there is a lot of good scientific information.

I was a little worried going in as to what sort of a reaction I would get. I wasn’t just lecturing either. There were tutorial sessions in which it was going to be necessary for me to be very open and accept the sort of intrusive questioning that I’d normally tell people is very rude. As it turns out, the students were wonderful. They were really nice young people, culturally quite diverse, and all wanting to learn about helping LGBT+ patients. Some of the comments that Rachel and I had after the sessions were very heartwarming.

I’d like to thank Rachel for involving me in this, and also huge props to Anna Taylor, the medical student whose idea the whole 3D Week project is. Thanks also to Dr. Hannah Condry from the Medical School for making the whole thing happen, and to Lea and Chrissie in the admin team for their support. Most of all, however, I’d like to thank the students for attending, and for being so receptive to the ideas we were putting forward. Having GPs who are trained in trans issues will make a huge difference to the lives of trans people in the coming years. I can’t begin to express how happy and proud I am to have had a part in making that happen.

Scientifically Illiterate, Medically Dangerous

The other major piece of anti-trans propaganda that appeared in the media recently is, of course, in the New Statesman. I am fast coming to the conclusion that Helen Lewis and her staff don’t just hate trans women, they want to cause us actual harm. First there was their trolling of Leelah Alcorn, and now this. Let me explain.

For the most part the article is a truly dreadful attempt at Oppression Olympics. It goes on and on about how evil, “McCarthyist” trans women are preventing feminists from saying, well, anything really. The most spectacular part of it is where it tries to insinuate that BlockBot, a tool developed by feminists on Twitter to protect themselves from GamerGate, is in fact a weapon invented by trans women to shut down feminist debate. (And here once again we see the accusation that by refusing to listen to the hate being directed at us we are somehow “censoring” our opponents.)

The reason I am interested in the article, however, is that it makes some specific scientific claims about trans women. (And by the way, you can always tell nonsense articles about trans people because they talk almost exclusively about trans women.) I’d like to take a look at these claims and see how they stand up.

The first thing I did on reading the article was to check the author to see if they had any scientific credentials. The byline is “Terry Macdonald”, which the article freely admits is a pseudonym. I’m guessing that this is an attempt to insinuate that writing about trans women is not safe, and the author has to remain anonymous for their own protection. Goodness only knows how long a New Statesman writer would survive in the shoes of Anita Sarkeesian, Zoe Quinn or Brianna Wu, who are actually risking their lives. But hey, trans women, the greatest threat to civilization the world has ever known and all that.

Or possibly, of course, it is some complicated shell game that will end with Sarah Ditum yelling, “See you misgendered me, you are a transphobe, I WIN!!!” Given that the situation is uncertain, I shall use gender-neutral pronouns for Macdonald.

Anyway, the point is that there is no evidence of scientific credentials. Nevertheless, scientific claims are made. In particular there is this:

The core of the ideology I’m referring to is the assertion that ‘trans women are women’. (We hear a lot less from and about trans men.) Exactly what this statement means depends on whether the speaker is using the word ‘women’ to refer to a social category or a biological one. In the first case there is a discussion to be had (though people may reasonably differ in their conclusions), but in the second case the assertion is patently false. Trans women are not, by definition, biological females. Yet in the most extreme version of the ideology, you cannot say that without being labelled a TERF.

I note in passing that there is a third meaning to the statement ‘trans women are women’, and that is a legal one. The good old Gender Recognition Act might have many flaws, but one thing that it has done is make thousands of trans women legally female. Macdonald conveniently ignores this. As to social categories, TERFS are all over how gender is a social construct, except when it applies to trans women, in which case their right to be socially female is suddenly questionable.

I also note that the reason we don’t hear a lot from trans men is that no one is devoting pages and pages of newsprint to preventing trans men from using men’s bathrooms. It is generally accepted that trans men are men.

The claim I want to look at, however, is this one about trans women not being “biological females”. What does it mean? Macdonald doesn’t say, so I am going to run through a bunch of possibilities to try to work out what this is all about.

The most obvious starting point is physical appearance. I often see people claiming that the breasts of trans women are “fake”, implying that they are the result of silicon implants. I can’t speak for everyone, but I can assure you that mine grew naturally, under the influence of estrogen, just like any other woman’s would. Some people also like to claim, because trans women have had their genitalia reconstructed, that our new genitalia are somehow made of dead flesh, and even that they smell of necrosis. The plastic surgeons are much better than that, I can assure you. Finally it is sometimes claimed that because we have our penises “cut off” we are incapable of enjoying sex, a comment so inaccurate that it tends to make me giggle uncontrollably.

How about internal organs, then? Well, trans women don’t have wombs or ovaries, but some cis women have to have them removed for medical reasons and that doesn’t stop them being women, does it? I think not.

One area in which trans women are often accused of being “biologically male” is sport. There is an assumption that a trans woman will have an unfair advantage over a “real” woman because of her “male” body. Well, as luck would have it, there are parts of the Guardian that do publish socially progressive articles about trans people. Their science and technology section can be quite good, but yesterday it was their sports section that stepped up to the plate by carrying an interview with Fallon Fox.

The article quotes Dr Eric Vilain, director of the Institute for Society and Genetics at UCLA, who helped the Association of Boxing Commissions write its transgender policy, and Dr Marci Bowers, an OB-GYN specialist and a leader in the field of transition-related surgeries. Both of them dismiss the idea that Fox has some sort of unnatural advantage over other female contestants. Dr Vilain is quoted as saying, “male to female transsexuals have significantly less muscle strength and bone density, and higher fat mass, than males”. Obviously there is a range of abilities, because not every woman is the same, but Bowers says of Fox, “There are taller women than her, there are bigger women than her, there are stronger women than her.”

The author of the article, Jos Truit, adds that, “transition could mean a hormonal disadvantage for Fox because of her low testosterone levels.” I’m highlighting that because what the experts say about Fox are not comments on her status as someone who has identified as female from an early age, but on her status as someone who has undergone gender surgery and hormone treatment. That’s important.

Hormones are hugely powerful chemicals responsible for all sorts of systems in the body. There’s a fascinating program about them currently available on iPlayer. Testosterone and estrogen are particularly important. Post-surgery, trans women no longer make testosterone naturally, but they can’t make estrogen either. Because of this, we are put on a lifetime prescription of what is essentially hormone replacement therapy. We are supposed to get regular blood tests too, because the doctors want to be sure that our estrogen levels are typical for adult women. It is a health issue, we are told.

Estrogen, of course, is what causes pre-pubescent girls to turn into adult women; and testosterone turns boys into men. But the hormones don’t suddenly stop working just because you have become an adult. That’s why trans women are able to grow breasts naturally. Estrogen treatment causes other effects as well, including the loss of muscle strength and bone density, and the gain in fat, reported by Dr Vilain.

The upshot of this is that if you were to take a blood sample from a trans woman, or check a whole bunch of characteristics such as those mentioned in connection with Fox, the results you got back would be typical of a woman, not of a man.

So where are we? Trans women appear to be “biologically female” from their external appearance and a whole battery of internal tests. Is there anything else we can look at? Well, Macdonald does admit that some research suggests that trans women have brains that look more like those of women than like those of men. This is fairly contentious stuff, and to be really safe researchers have to be very careful to ensure that what they are measuring is the pre-transition brain, not the brain that has been bathed in estrogen for decades. Up until yesterday I was not prepared to state that a biological basis for gender identity had been discovered.

Then this was published. It is a paper in an academic journal called Endocrine Practice, and it takes the form of a literature review, meaning that it looks at evidence from a wide range of studies. The conclusion of the paper is, “Although the mechanisms remain to determined, there is strong support from the literature that there is a biological basis for gender identity.”

Michael Dillon would be so happy. I don’t suppose that Macdonald has had a chance to read the paper yet, but I’d be interested to know what they make of it.

Finally, of course, we come to chromosomes. That’s the usual last resort of those who wish to “prove” that trans women are “really” men. Women have XX chromosomes, and men have XY, and all trans women are XY, right?

Well, no. Macdonald admits that intersex people exist, but doesn’t seem to know much about them. One of the better known intersex conditions is Klinefelter’s syndrome, which generally involves having XXY chromosomes, though the best known example, Caroline Cossey, has XXXY. The point about Klinefelter’s is that people with that condition are born looking male, and are assigned male at birth. Some of them identify as female, and like Cossey choose to go through gender surgery. They may identify as trans women — Cossey does. I’m interested to know how Macdonald would classify them. Are they “really men”, or do they get a pass because they are also intersex?

One of the most spectacular intersex conditions, however, is androgen insensitivity syndrome. People with this condition have XY chromosomes, but their bodies are unable to process androgens, which are male sex hormones. As a result their bodies develop looking female, and they are assigned female at birth. Their only significant difference from XX people is that they don’t normally have wombs or ovaries.

So if chromosomes trump everything, are people with AIS “biologically male”? Or do they get a pass and count as “biologically female” because they have AIS? And if so, how is a trans woman, whose body doesn’t process androgens because she can’t make them anymore, different?

I suspect that some mumbling about age might be happening in the New Statesman bunker (buried deep underground for fear of nuclear strikes by angry trans women) right now. And there we come to another interesting question: trans kids.

As I mention above, hormones are responsible for the massive changes that humans undergo at puberty. These days, trans kids are able to access treatments that allow them to go through puberty in their preferred gender. A young trans woman today will never have been through male puberty. She will have been through female puberty. How is she not “biologically female”?

But, but… Time for one last throw of the dice. Macdonald says,

Other arguments espoused by some trans activists are entirely lacking in scientific support, since they deny the existence of human sexual dimorphism.

Oh, right humans are a sexually dimorphic species, so males and females must be different. Paging Dr Bowers here:

“Sexual dimorphism refers to the amount of physical difference between the sexes,” Bowers explains. “The fact is, human beings actually differ very little in their sexual dimorphism, much less so than other species.”

That lack of difference is, of course, much less pronounced in children than in adults. And, you know, isn’t that one of the central tenets of feminism: that when it comes down to it men and women are not that different? Why, then, is it so important for some feminists to insist that trans women are, and can only ever be, men?

Basically, I suspect, it is all down to willies. It used to be that TERFs would claim that gender was a social construct, and that trans women were constructed male in childhood and could never change that. As trans girls began to transition at younger and younger ages, it eventually came down to, “but they had willies when they were born, and that makes them men!”

It is the same with the biology. Trans women can be as close as possible, biologically speaking, to cis women — certainly well within the natural range on most tests — and they can transition as young as possible, never going through male puberty. But eventually it will all come down to, “but they had willies when they were born!”

The main point I wanted to make here, though, is not that Macdonald’s argument is scientifically illiterate. I also want to note that it is medically dangerous.

One of the things that modern medical science is discovering is that the health of the body is very much dependent on what gender it is. And that’s not a question of chromosomes, or what gender it was assigned at birth, it is mostly down to hormones. For trans women to remain healthy, it is important for doctors to treat them, in most cases, as biologically female, because their bodies will react like those of other women. By encouraging people to think, against all scientific evidence, that trans women are biologically male, Macdonald and their friends are putting trans women’s health at risk.

Doubtless the argument in the New Statesman bunker is that the thing to do would be to ban gender medicine. Then all of the trans women would commit suicide and the problem would be solved in what they would regard as a humane and civilized manner. Thankfully much of the rest of the world doesn’t seem to share their views.

The UK Takes A Stand On Conversion Therapy

Today the UK Council for Psychotherapy is meeting with the Department of Health to launch an agreement on actions to end the practice of conversion therapy in the UK. You can find the UKCP announcement here.

While this is generally good news, there are two things to note about this. Firstly it applies only to conversion therapy intended to alter the sexuality of the patient. There is no mention of the sort of cruel treatment suffered by Leelah Alcorn and other trans children. Secondly, the practice of conversation therapy will not be banned, only officially discouraged. I’d like to address these two points.

On the question of the inclusion of trans therapies, it is important to understand that the wheels of government move very slowly at times. All of this was put in place long before Leelah’s story became headline news. Also the Memorandum of Understanding that UKCP produced was written in response to a government request that specifically limited the question to sexuality. Some therapists, in particular the good folks at Pink Therapy, definitely want to extend the discussion to gender issues.

There are multiple possible explanations for why gender isn’t yet included. It could be that the same TERF-driven policy makers who came up with the Spousal Veto are also responsible for keeping trans people out of this initiative. However, there is also the problem that being trans is still listed as a mental illness in the major international directories, whereas being gay is not. While trans people are still officially deemed to be “sick”, it will be very difficult to stop people from trying to “cure” us. The World Health Organization will be publishing a new edition of their directory this year and I have some hope that it will address that problem.

By the way, it was inclusion of being trans in these directories of mental illness that got trans people included in the driving ban in Russia. I see from the Moscow Times that the Russian Health Ministry has tried to clarify their position. It is pretty clear that they went by the international definitions of mental illness in deciding who to ban, and they now claim that trans people will be allowed to drive as long as nothing in their condition makes it unsafe for them to do so (which basically means giving a lot of leeway to the police and courts).

As to the question of banning these treatments, Dominic Davies of Pink Therapy has a very interesting blog post on the subject. He lists three reasons why he thinks an outright ban is not advisable.

Firstly he raises the specter of “religious discrimination”. I’m not hugely impressed by this. If a Christian group cited the story of Abraham and Isaac as justification for sacrificing children no one would think they had a leg to stand on. Driving your children to suicide through torture should be treated in the same way. However, I do accept that there would be a big PR problem if an outright ban were advocated, because the Daily Malice would be right there with the religious discrimination argument.

Secondly he raises the issue of definition. This is a fair point. All sorts of people offer “therapy”, and by no means all of them are accredited in any way. Actually enforcing a ban would be be very difficult. That doesn’t necessarily mean that we shouldn’t have one, it just means that it would not work as intended.

The best argument is the one that a ban would make offering any help difficult and dangerous. The blog post notes that 1 in 6 of the UK’s professional therapists admits to have either offered sexuality conversion therapy or referred a patient to someone else who practices it. This means that a lot of (presumably very scared) people are coming to therapists asking for treatment. Davies argues that if a ban is in place then practitioners are likely to refuse to help the patient at all because of the risk of being struck off for offering a banned treatment. If conversion therapy is merely officially discouraged then the patient can be treated, and hopefully can be helped to view their sexuality in a much more positive light.

Anyway, as I said above, this is definite progress in the right direction. Also the Pink Therapy folks promised me via Twitter that they would continue to fight for trans issues to be added to the Memorandum of Understanding. More power to them.

The TDOR Ceremony

The head table at TDOT 2014

Our TDOR Remembrance Ceremony took place last night. It was attended by 28 people, most of whom were trans, and at least three of whom were people of color. (I say “at least” because I don’t know how everyone identifies.) Inevitably it was a solemn affair, but we did also have a constructive discussion about progressing trans rights in Bristol afterwards.

Thanks are due to the Rainbow Group, the City Council’s LGBT staff network, who provided the money to hire the venue, and to Sarah and her colleagues from LGBT Bristol who provided the refreshments & flowers and did most of the work.

My apologies to Jamie and the rest of the Bristol University group for missing their event. Lots of people wanted to talk to me after the ceremony, and I needed to stay and listen to them.

The discussion, perhaps inevitably, focused primarily on health issues. There is a huge amount of anger amongst the UK trans community at how badly we are treated by the NHS, and how specialist gender services appear to be getting steadily worse. Sadly there is not a huge amount that the City Council, and bodies funded by it, can do about this. However, there are other things that can be moved forward, and hopefully I’ll have more news in a few weeks.

Thanks, Sir Elton

As some of you will know, Sir Elton John founded a charity devoted to helping people with HIV/AIDS. They work primarily by granting money to other charities, to research projects and so on. Yesterday they announced a grant of $200,000 to one of my favorite organizations, the Transgender Law Center. The money will be used to undertake a national (USA) needs assessment of trans people living with HIV. For further details, see this news story. I’m delighted to see Elton, not only standing up for trans people, but also putting his foundation’s money forward to help them.

Today on Ujima – Afrofuturism, Prostate Cancer, Regulating Landlords, Somalia

Well you can see how busy that was just from the title.

Firstly I had Edson Burton in the studio to talk about the Afrofuturism season at the Watershed. Well, I should have done anyway. What actually happened was that Edson fell through a warp in the space-time continuum and was a bit late. Fortunately my colleague, Tommy Popcorn, had been at the screening of the George Clinton film and was able to talk about George for a while. My thanks to Tommy for filling in so ably. Also I related the story about the Playtex seamstresses who made the Apollo spacesuits (which I got from Hannu Rajaniemi’s Guest of Honor speech at Finncon).

Edson finally made it to the studio and previewed some of the up-coming Afrofuturism material. The item on black superheroes on Saturday sounds good, and obviously I’m looking forward to next Wednesday when they’ll be showing Pumzi, followed by a film about black science fiction writers, including interviews with Chip Delany, Octavia Butler and Steven Barnes. The later will be introduced by Ytasha Womack (live via Skype from Chicago), and I’ve just been writing a web article to go with it.

The second half hour was given over to a young lady called Vanessa from Bristol University who is studying Caribbean men who have had prostate cancer. I discovered the scary fact that as many as 1 in 4 Caribbean men in the UK can expect to be diagnosed with the disease, a much higher percentage than for white or Asian men. No one knows why, and Vanessa’s research is an important part of trying to find an answer so that something can be done about it.

I note in passing that most trans women will have prostates and can therefore get prostate cancer. Most GPs have no idea about that.

You can listen to the first hour of the show here.

For the second hour I handed the mic over to Paulette who had some more political material. First up were a couple of ladies from the City Council who help run a scheme to regulate private landlords. This is obviously great for tenants, but it can also be good for landlords too because going through an approved City Council scheme can be cheaper than using a letting agency.

In the process of doing the interview Paulette and I discovered, to our horror, that it is now mandatory for private landlords to check that anyone they let property to has the right to be resident in the UK.

For the final half hour we welcomed three young people from the Bristol Somali Youth Network. Many of you will have heard the story of Yusra Hussien, the 15-year-old Bristol girl who is believed to have flown to Turkey. The tabloid newspapers have been spinning this as “radicalized Muslim girl flies to join IS”. The story we get from the Somali community in Bristol is very different. The young people of BSYN have been trying hard to give their fellow teenagers a sense of community and belonging, but that must be very hard when so much of the British media is so openly hostile.

Talking of BSYN, they have a wonderful project going at the moment to collect unwanted books and ship them to the library in Mogadishu. Hopefully I will have them back to talk about this in a couple of weeks.

You can listen to the second hour of the show here.

The play list for the show was as follows:

  • Dance Apocalyptic – Janelle Monae
  • Alphabet Street – Prince
  • Children of Productions – Funkadelic
  • Clouds – Prince
  • Our House – Madness
  • Burning Down the House – Talking Heads
  • I Feel Alone – Maryam Mursal
  • Welcome – Maryam Mursal

The track “Clouds” comes from Prince’s new album, Art Official Age. My thanks to Edson and Charlie Jane Anders, both of whom enthused about the album to me. It is a very Afrofutrist piece, telling the story of a Mr. Nelson who is awakened after being in suspended animation for 45 years. One of Prince’s collaborators on the album is Lianne La Havas, a Jamaican-British musician whom Karen Lord tells me I need to listen to. And hey, if Prince thinks she’s good, and so does Karen, that’s good enough for me.

Maryam Mursal is Somalia’s best known musician. Both of the tracks I chose come from her album, The Journey, which tells the tale of the seven-month trek she and her five children undertook to escape from the Somali civil war and find a new home in Europe. The album is co-produced by Simon Emmerson and Martin Russell of Afro-Celt Sound System, and is available from Peter Gabriel’s Real World Records. Peter plays, and sings backing vocals, on it. To find out more about Maryam and the record, go here.

Today on Ujima – Ann Leckie, Art, Massage & Trauma

Well, that was… not up to my usual standard.

I’ve been getting very little sleep of late, and you need to have your wits about you to host a radio show. Even with the Ann Leckie interview being a pre-record, I managed to stuff up somewhat. I couldn’t even do basic arithmetic. Thankfully I have a bunch of great songs on hand for when I do mess up and need something to get me out of a jam. Also Valentin, my engineer, was heroic. Paulette and Frances provided valuable support, and our studio guests were wonderful.

Anyway, first up was my interview with Ann Leckie, recorded at Worldcon the day after she won the Hugo. Sadly it does not contain the conversation we had later about how to film Ancillary Justice and keep that sense of unease that the use of “she” creates in the reader. I do want to see that happen.

After Ann I talked to Suzie Rajah about Art on the Hill, one of the many fine local arts trails that happens each year in Bristol. Thankfully Suzie needed very little prompting from me.

You can listen to the first hour of the show here.

For the second hour Paulette joined me to interview two ladies: Nealey Conquest of Community Conscious, and Judy Ryde of Trauma Foundation South West. Nealey is a holistic massage practitioner, while Judy runs a charity that helps people who have suffered extreme trauma, such as refugees fleeing war zones.

You can listen to hour two here.

The playlist for today’s show was:

  • Just Like a Woman – Bob Dylan
  • Another Girl, Another Planet – The Only Ones
  • Electric Avenue – Eddy Grant
  • Running up That Hill – Kate Bush
  • Vincent – Don McLean
  • If I Can Help Somebody – Mahalia Jackson *
  • I Can make You Feel Good – Shalamar
  • Midas Touch – Midnight Star
  • Everybody Hurts – REM

* This is one of the songs that my mum asked to be played at her funeral. It was also a favorite of Dr. Martin Luther King. Mahalia Jackson is probably the finest gospel singer ever.

A Very Long Day

Yesterday I was up and dressed around 7:00am (which for me is the middle of the night) because I can never be sure when the carers will turn up. Most of the rest of the day was spent dealing with medical visitors of one sort or another, or on errands to do with patient care, or being on the phone to various medical people. The nature of the discussions gradually escalated through the day, culminating in a decision to take my mother into hospital that evening. I finally got home at around midnight.

The good news is that Mum will be far better cared for in hospital than she will be at home. There’s no way, even with the three carer visits and one nurse visit a day we were getting, that we can provide the same level of care that 24-hour nurse support can give. When you are very ill, the slightest thing can knock you down, and you need help to get back up again.

On the downside, my days from now on are going to revolve around visiting a hospital in another town. The train station locations are not convenient at either end, and while there is a bus I travel very badly on such things and will happily walk miles to and from train stations to avoid using them. The best solution is to hire a car, and the weekly hire rates don’t seem too bad. Longer term I need to buy one, and with Kevin’s help I’ve just extracted a large portion of my savings from the USA and can start looking for something second hand. I have an awful feeling I’ll need to get used to driving a manual again.

As yet I have no idea what this is going to do to my available time. It is likely that the hospital will want Mum home again as soon as possible, but how many days that means I do not know.

Silence On The Personal Front

There’s a lot that I could be writing about what I’m going through right now. Mostly, however, I’m choosing to remain silent. Partly that’s out of consideration for other family members, but to a large part it is because it is become clear just how poisonous the culture around health care is these days. It is no longer the case that everyone is doing as much as they can for the patient. For many, probably the majority, of health industry workers these days the top priority is avoiding getting the blame if anything goes wrong. Because I now have to live within this culture, I have to be very wary about what I say publicly, just in case it could be somehow twisted and used against my mother, or against me.

Jay Lake Memorial Posts at Tor.com

Today Tor.com is running a series of posts in memory of Jay Lake. He is, of course, still very much missed by the science fiction community. The recent convention season has rubbed that in. And now, as I am starting out on the process of nursing someone who has cancer, I am starting to get a much better idea of what those close to Jay will have gone through while he was ill. It is a horrible disease, and I am so grateful to Jay for all of the work he did to help to find a cure while he was able to do so.

The posts on Tor.com are as follows:

Have some good cheese, everyone. Jay would like that.

The NHS – The Bad and the Good

We had a minor medical emergency this morning, in that my mother’s wound dressing started leaking blood. It didn’t look serious, but equally it didn’t look like something I should try to fix myself as up until now fresh dressings had always been applied by nurses.

So I phoned the carers, because that was the emergency number I had. They said I should phone the GP surgery, but that because it was Saturday I’d probably get a message to phone 111.

I phoned the surgery. There was indeed no one there. I got a message apologizing that I may have received a number of text messages today about appointments, which had been sent out in error. The answerphone system then told me that the message space was full, and stopped. There was no information as to what to do in an emergency.

So I called 111 as suggested, and got through immediately to a very helpful chap who promised to send a nurse. It took her about 3 hours to arrive because she was busy, but when she got here she was brilliant.

It is all very hit and miss. Some parts of the NHS still clearly care deeply about patients. Others are a complete shambles. Slowly but surely I am getting to know who I can trust and who I can’t.

Some Advice on UK Medical & Financial Regulations

If you have an aged relative who may become seriously ill, make sure that someone has a Power of Attorney for health and welfare. Without it you may find that NHS staff will refuse to give you any information about your relative’s condition, even if you are the next of kin. I am finding the staff at my mother’s surgery exceptionally obstructive in this regard. There is a carer form that I could get signed, but to do so I have to get myself, my mother and the doctor in the same place, and as the surgery blocks all access to the doctor that’s proving very difficult.

Of course the same is true of banking. You need a Power of Attorney for property & financial affairs in order to help a sick relative with the bank account. If you don’t have one and, for example, help them with online banking, you could get into all sorts of legal trouble.

Fortunately I have the latter. I note that getting this stuff is a complicated legal process — far more so than strolling up to a notary like you can do in the USA — and currently takes many months, far longer than the people who sorted ours expected. That’s probably because lots of people are suddenly finding themselves stonewalled by jobsworth bureaucrats and need to get this legal bypass arranged.

Update: I’ve just been speaking to the guy who arranged the Power of Attorney for my mother. He says the reason he didn’t advise getting the health version as well is because the NHS will often ignore them.

Personal Update

The situation with the care workers got a bit better yesterday after we were visited by some managers rather than just minions. The minions might see that things are going wrong, but they aren’t allowed to do anything, or recommend that we do anything. They are very tightly scripted. Managers have a bit more leeway to try to improve the situation.

So we now have what approaches a plan as to how to make mother’s life as comfortable as possible, under the circumstances, and to move her towards being better able to take care of herself. We may also get help from the likes of physiotherapists, and people who can provide useful gadgets that do not involve spending thousands on making changes to the house.

On the other hand, this is just the care workers. It is clear that the various agencies involved do not talk to each other. Here is an example.

Having had some surgery in hospital, my mother was sent away with paracetamol to use as painkillers during her recovery. Those have since run out. The hospital was supposed to have told the GP surgery about this so that appropriate prescriptions could be issued. The surgery (who appear to have caused a lot of the problems my mother is facing) says they haven’t heard a peep out of the hospital and won’t issue a prescription until they do. They also have no plans to send my mother’s GP to see her, despite the fact that she’s just out of hospital and can’t walk. So I bought some paracetamol, because they are cheap and easily available. When this morning’s care worker found out about his he tutted about taking drugs without prescription and said he could not have anything to do with that, despite having insisted the day before that we must contact the surgery to get more paracetamol.

My guess is that a note about taking non-prescribed drugs has already found its way onto my mother’s file at every single agency involved, because that can be trotted out as an excuse if anything goes wrong.

Anyway, my aunt will be here tomorrow. She has a long nursing career behind her. We’ll see if anyone pays more attention to her than they do to me.

A Little Venting

As some of you will know, my mother had to go into hospital briefly last week. Other family members have been doing a good job helping out while I have had other commitments, but I’m free of that stuff now and as the person with the most flexible lifestyle, and living the closest, it is down to me to do much of the care.

I have been here less than a day and I have already had more than enough of health workers. A more arrogant, condescending and absolutely fucking useless bunch of jobsworths would be hard to find. We’ve had three separate visits. None of them seem to have any idea what any of the other lots of doing. All of them made it absolutely clear that they were there to do only one specific thing and they would not do or say anything outside of that. All of them clearly resented having anyone else here other than the patient. The amount of false jollity being exuded could fuel the entire country’s pantomime season for several years. The overwhelming impression that they give is that they don’t care about anything other than going through whatever act they’ve been told they have to perform to avoid getting sued for actually doing anything. You could not be more obviously dishonest if you tried.

Anyway, this is by way of warning that I am liable to have far less time available than usual, and I may be on a bit of a short fuse for a while.